April is Autism Awareness Month

April 2022

                                A Proclamation on World Autism Awareness Day, 2022

A nice message from the White House - https://www.whitehouse.gov/briefing-room/presidential-actions/2022/04/01/a-proclamation-on-world-autism-awareness-day-2022/

P/S - Update on the Good Doctor - Much better than 2021 season with the focus returned to ASD in most of the episodes.

April 2021

With the Global Covid 19 virus I can't help but wonder about all the routine movements, processes and help that is now so fragmented for people on the spectrum. Perhaps, others can now learn what it is like to have your "normal" life in such a disarray. Autism people have known this kind of stress their whole lives.

While sitting at home with the rest of the world I found this movie that was really good about an English lad who has autism. Check it out!

https://agoodmovietowatch.com/brilliant-young-mind-2014/

And of course, I really like the Good Doctor. However, the 2021 season has lost its gusto. Too many social issues and political correctness is ruining the show about ASD.

April 23 - Update

I was sent (Thank you Matthew) this link
https://www.wizcase.com/blog/internet-safety-guide-for-people-with-autism-spectrum-disorders/
that provides valuable information about internet safety for people with ASD.

Click link below for all my posts on Autism over the years. http://qualityg.blogspot.com/search/label/ASD%20-%20Autism%20Spectrum%20Disorders

or on the ASD Label (Left Sidebar) for more of my posts on Autism.

I was throwing away some old papers today when I came across this poem, I wrote 25 years ago...

SHINE!

At 11:45 we start to get antsy while he smiles like an old gray fox
At noon we go to our lockers and get our Sponge Bob lunch box
He then checks our shoelaces and pulls up our socks.

Then it’s back to class and get called in to line
We shuffle to the back because he said that’s where we shine
He walks with us quietly and whispers all will be fine.

As we walk quietly in line headed to the lunchroom we go
We then search for a place at a table where a friend might show
While the man who is with us sits across the room laying low.

Often times we don’t eat, and we just play with our food
Then the lunch lady turns and signal to the man that we are being crude
He then stands where we can see; and gives us the “Look” we best eat before he gets in a mood.

After we eat, we go to recess, sometimes it’s in, but we hope it’s out
It all depends if the flags are green hanging about
Yellow means stay inside then we groan and pout.
Today we go outside and play on the playground equipment
We hope a friend will stop and play even if for a minute
But most of the time we play alone and it seems to be infinite.

At 12:35 the whistle blows loud and sometimes we cover our ears
You see the decibel and noise level brings out some fears
But we know we are safe because our guardian is always near.

Another lunch has come and another has gone by
Sometimes we get into trouble and sometimes we cry
But mostly we wonder about friends and ask him WHY?

After we line up we will try not to talk and to stay in line
Then our teacher meets us and says you all look fine
And the man who walks behind smiles and says we SHINE!

The Demise of the American Customer (Patient) - Company (Doctor) Relationship

I received the below write-up (The Death of Healthcare) from a friend of mine in Florida concerning healthcare. The unfortunate problem here is that it is in every industry today. You' can't blame the pandemic, it was bad before but now it is worse.

For example, I have spent weeks trying to get Home Depot to return calls (voice mails) and speak to a "person" to fix an installment project ($11,000). I have had to call the original salesperson and installer to get information that should come from the office of customer relations/installations that is in charge of ordering, monitoring and setting up follow-up appointments. Instead, I have to take the lead and do all the calls. When I do speak to the people who I do eventually make contact with they are apologetic and nice, but they are not in control of making changes. 

I must say they have responded accordingly after my many inquiries and broken promises to call me back but still it should not happen in the first place. One of the original installers went the extra mile and personally looked into the situation and called me back with details and dates for the parts and installation. She promised to call when the parts arrive and will personally drive out and fix the unit. I sent an Email to her boss praising her efforts and customer retention skills.

What is amazing to me is that corporate managers/leaders do not see the crisis of customer relations ruining so many relationships. How many times to you get excited when you can find a plumber, electrician or contractor that actually does their job and treat you like a person and keeps you informed and communicates in a friendly timely manner. These types of workers can name their price, and everyone wants their name. It is no different for every business today regardless of industry. You want to destroy the competition then go back to quality customer/supplier relationships.

The Death of Healthcare

BY:  DIANE LOTT, RN, BSN, BROKER

My subject this week is not going to be as a Broker concerning real estate but as a former registered nurse working in hospitals, and as a nursing educator for 35 years. Although I have not been in the trenches for some time, I am a consumer of healthcare along with every other American. I can’t exactly put my finger on when healthcare turned from a compassionate “calling” to ease suffering into a big callous business that treats the people it's supposed to serve with utter disdain and indifference.  This didn’t just begin. This has been a slow, insidious process that is multifaceted.  It appears to have started when physicians sold their practices to managed care businesses, private hospitals sold out to conglomerates who treat their employees horribly which in turn created an apathetic staff and insurance companies began refusing care based on billing the wrong “codes”.

First, the advent of “electronic medical records” took the caregiver’s attention to a computer keyboard and screen instead of the patient. This was supposed to be beneficial to the patient by keeping records online for information sharing from doctor to doctor or hospital to hospital.  The problem that occurred is that not all hospitals, doctors or caregivers use the same computer software system.  Information sharing is limited to the computer program that a particular hospital system uses. So, a patient can be seen in 2 different hospitals and neither hospital can access the others information. This puts the patient back to square one with providing a historical synopsis of care and results to their caregivers.

Secondly, the more frequent use of “virtual” visits with our health professionals reduces the more personal aspects of a person’s care to the same plane as “Facetiming” your mechanic.  It has become extremely impersonal and the whole time that your doctor is talking to you, all you see is the side of his/her face as they type.  The patient is supposed to take their own weight, blood pressure and pulse and report what they got to the nurse that calls 5 minutes before the doctor.

Thirdly, if you happen to win the lotto and get into an actual office while you have a problem that isn’t just a “maintenance visit”, the chances that you will see your doctor are slim to none. Most likely, the person you see is a Nurse Practitioner (NP) or a “paraprofessional”, namely a Physician’s/Medical Assistant. Now, I don’t have anything against either one of them.  My husband happens to be a Nurse Practitioner, but I don’t want to see someone on the “second team”. I would like to be taken care of by someone that has attended medical school, residency, and possibly performed an internship, namely a doctor.  Good luck with that one, though.

Now on to the next item on why there is a “decline of healthcare”.  The patient has been removed so far from their own health professional by numerous layers.

They must call a “call center” now instead of their personal doctor’s office. Chances are that this will take numerous attempts before they get a human on the line and they were successful in maneuvering the phone system after hearing the prompts; press “1” for this, or press “2” for that. Hopefully there are family members willing and able to help the older patient with the basics of even making an appointment in the first place. If a mistake or change must be made, then the process has got to be undertaken all over again. Gone are the days that you could call your doctor and hear an old familiar voice that recognized who you are and would accommodate you without much ado.

Lastly, the care received in hospitals these days is bordering on being criminal. From apathetic staff, nurses, and “hospitalists” (don’t even get me started on this) who don’t know who you are, your history, medications, family, or anything else about you. It’s sad to hear that people in our very own communities would rather die at home than go to the local hospital to be “shelved” in a hallway, or room like a can of peas; receive no daily hygiene care (offered a bath, linen, or water); place their call light on for hours without it being answered and request that family members bring them Tylenol on their next visit. My own family members have received other patients’ medications but didn’t take them because they had enough sense to ask questions, refuse treatments or tests that they knew were only to “pad” the bill. There is a “Patient Bill of Rights” …. ask for it upon admission and make sure that you have a surrogate. Informed consent means that they need to explain the procedure in full detail; the good, bad and ugly.  Don’t just go with the suggestion it is needed, ASK QUESTIONS!!!

Diane Lott, RN, BSN

Paradise Found Realty, Broker

Here is another article that also brings attention to the Demise of American Management.

     https://www.yahoo.com/news/doctor-made-cry-summed-everything-120051998.html

The Greatest American - ?

For many years I have been an avid reader and researcher of History. Most recently I have concentrated on the early formation of the United States and in particular the Founding Fathers.

https://www.biography.com/people/groups/founding-fathers

https://www.history.com/topics/american-revolution/founding-fathers-united-states#section_10

I recently had a conversation with some friends, and we debated who do we think is the greatest American in history. One can debate what means the greatest. Is it the greatest scientist, composer, writer or athlete? You can go on and on and select so many deserving individuals.

The person I believe who is the greatest is the one who contributed the most to us being an American and the creation of the United States. I won't go in to all the qualities, failures and attributes this person brought to all of us, but I would rather concentrate on one fact that I believe this person had that separates him from all others. It was his ability to know when he was wrong (Wisdom) and correct his faults and become a better person. He also had the insight of being one of the few people in the world at the time that understood what it was to be an American to the British and French as well as being a pseudo citizen of the European nations to the Americans.

Without his efforts to bring the France in to the battle against Britain (especially at Yorktown) and his knowledge of science, diplomacy, the written word and human emotions our country would not have been created or established as a free democracy.

 Perhaps his greatest foresight was his realization that slavery was wrong. Being a slave owner and later understanding how wrong he had been led him the be one of the first and most prominent abolitionists who created his wrongs by establishing schools for blacks among many other activities. 

This person spent his last years in life trying to convince congress of the evils of slavery and that it should be abolished. None of the other Founding Fathers would take this stand and support his efforts. Please don't confuse the fact that I'm saying he was the greatest person, but I'm saying he was the most influential in us becoming Americans in the eyes of the world.